We are back home after another hospitalization - our sixth in six months.

Benji is stable, but fighting off both a lung infection and a virus. Even common illnesses challenge his heart, so he is hospitalized for medical support and monitoring.

Life with a medically needy kiddo is unpredictable and often requires quick decisions and changes on the fly. Hopefully, we can keep him home for a while now.

The doctors tell us that life will 'normalize' some for now, as much as it can with a medically needy child. While we hope that is true, we still hold our son with open hands.

We will be staying local to Gainesville for a few more days to monitor Benji and make sure he doesn't need readmission for any reason. But we are confident we will be heading home very soon!

The operation began this morning at 8:30am and ended about five hours later. The surgeon said everything went well and that Benji's heart is strong.

Six months ago we felt this day was a lifetime away. But it's here.

Benji’s surgery has been moved up several weeks to Friday, August 8.

Life with a medically needy baby can change quickly…

If you're following our journey, take this post to rejoice with us! We are home, and so far things have gone as well as we could have hoped.

Benji continues to recover as he approaches 1 month old.

Our time in Gainesville got significantly more...interesting...in recent days.

Since HLHS is new to most, it has led to misunderstandings and many questions. We thought it would be helpful to clarify what exactly HLHS is and what Benjamin and our family are facing.

We are still deciding which team and institution to entrust with these operations and the long-term care of our son, but we expect to decide in the next couple of weeks.

We have set up a fundraiser for those who would like to help us with Benji. This will enable us to focus solely on his care until we can return to full-time work and ministry.